What is it?
We are providing a new specialist independent advocacy service from September 2015 for people with neurological conditions who are based in Newcastle and Gateshead. The service is funded by the National Lottery through the Big Lottery Fund.
Who does it help?
The service is open to you if you:
- Are aged 18 years or over
- Are based in Newcastle or Gateshead
- Require support in making your views and feelings known
- Have a neurological condition or are trying to get a neurological condition diagnosed
There are a wide range of neurological conditions, from stroke and spinal injury to multiple sclerosis (MS), Parkinson’s disease and epilepsy (not an exhaustive list). They include progressive, incurable and stable conditions as well as sudden onset neurological incidents.
Please contact us to discuss whether you are eligible.
How does it help?
The service is provided using both paid and volunteer advocates who are trained in how neurological conditions might affect everyday life and make it difficult to access information and services at the right time.
The advocates will support you to:
- Process and find ways of remembering information
- Understand your rights and choices
- Make and communicate decisions
- Access services
- Access support groups to address social isolation
- Live independently
- Interact with health and social care professionals
- Challenge assessments and care packages
- Develop skills to speak up for yourself where possible
How can I get this help?
If you would like to make a referral for yourself or for someone else for Neurological Advocacy you can either:
- fill in a referral form
For help or to speak with us please call Dorothy Lee or Gem O’Connor on 0191 235 7013.
We welcome referrals from:
- People with neurological conditions themselves
- Partners, family members, carers
- Health and social care professionals
- Neurological charities
Why is it important?
Sometimes people with neurological conditions often have complex needs which are not fully understood. They may often be isolated and have difficulty communicating and engaging with services. We want to ensure people access all the help they can.
Volunteering with the Neurological advocacy service
If you are interested in becoming a Volunteer Advocate with this service please go to Volunteer with us
Who will be involved in developing the service?
Advocacy Centre North (ACN) will be working in partnership with the Northern Neurological Alliance (NNA), which works with neurological charities and networks to campaign for better services. NNA will use their specialist knowledge of this client group and their needs to provide a specialist training programme to the advocates. Neurological charities will also have input into the specialist training. We are not the specialists in your condition so we will work with you to understand how your condition affects you and the help you would like.